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Why I’m Unafra >

Why I’m Unafra >

“Who lives such as this?” my then 7-year-old son cried away whenever their cousin, then 13 yrs old, did a face-plant into her supper dish. I pressed straight right back my stool, stood up, and caught her as she seized, deftly unbuckling the strap that kept her safe inside her own stool, and eased her jerking body into the flooring.

Her other brother, 9 yrs old, had currently set you back the family room to grab a pillow to put under her mind when I kept her stiffening and jerking hands and legs from striking the table feet and kitchen stove. He brushed straight straight back hair from his own little hand to her face.

“It’s okay, it is OK, it is OK,until it stopped and she was still” I murmured. We crouched down beside her, place my arms under her feet, and lifted her limp human anatomy up, making my method along the hallway and into her room.

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The guys climbed right back onto their stools and completed their dinners while we sat with Sophie, viewing her fall under the deep rest that generally accompanied these seizures that she had just about any solitary evening during the dining room table.

We live such as this

Sophie got diagnosed with infantile spasms in 1995. It’s a uncommon and type that is severe of. She had been a couple of months old.

The perspective if you have this disorder that is terrible one of many bleakest of this epilepsy syndromes. Research implies that a lot of people who reside with infantile spasms could have some form of intellectual impairment. Numerous will even develop other types of epilepsy afterwards. Just some will live lives that are normal.

For pretty much the second 2 full decades, my child would continue steadily to have seizures — sometimes hundreds a day — despite trying 22 antiepileptic medications, searching for two trials for the ketogenic diet, and countless alternate treatments. (more…)